Trigeminal neuraliga surgery

[Gramps]

I had an MRI last week and have a consult with a neurosurgeon on the third.
As i understand the success rate is over 90%.
If the MRI shows Im a candidate and the neuro takes me Im inclined to do it.
Ive lived with this too long. The meds to keep the pain down are debilitating.

[phillygirl]

Weird. I just had a client come in whose husband has this condition as well. She said the surgery has improved tremendously since they first started exploring options and the success rate appears to be quite good. I wish you much luck.

[Celeste Chalfonte]

I had an MRI last week and have a consult with a neurosurgeon on the third.
As i understand the success rate is over 90%.
If the MRI shows Im a candidate and the neuro takes me Im inclined to do it.
Ive lived with this too long. The meds to keep the pain down are debilitating.

Do they ablate the nerve or transpose it? If it has a 90% success rate, it's certainly worth a try. From what I've herd about the condition, not much could be worse, so any chance of better is a good bet.

[Frostbit]

I had an MRI last week and have a consult with a neurosurgeon on the third.
As i understand the success rate is over 90%.
If the MRI shows Im a candidate and the neuro takes me Im inclined to do it.
Ive lived with this too long. The meds to keep the pain down are debilitating.

Sounds like a good call!!

[Gramps]

Do they ablate the nerve or transpose it? If it has a 90% success rate, it's certainly worth a try. From what I've herd about the condition, not much could be worse, so any chance of better is a good bet.

I will know more after the consult

[Celeste Chalfonte]

I will know more after the consult

Fingers crossed then. Please let us know how things are going for you. We care.

[Newman]

Godspeed, Gramps. I look forward to some good news soon. I hope everything goes smoothly.

[80zephyr]

Good luck. Now, I have some other weird disease I have never heard of to worry about. Lol.

Mark

[Gramps]

Good luck. Now, I have some other weird disease I have never heard of to worry about. Lol.

Mark

It isnt a disease. You dont catch it. It is a condition that irritates the trigeminal nerve at the point where it leaves the skull and controls pain, sensory and motor functions of the scalp and face.
As Frosty said at one time it is described as suicidal pain.
When it first started an ER doctor diagnosed it as a sinus infection, then an Urgent Care Dr did too.
The pain meds did nothing, At one time I was crying with the pain and my Daughter took me to the VA ER and a scan revealed the condition.
The VA does not do brain surgery in St Louis so I got a neurologist who put me on neuro pain meds with side effects that effect balance energy etc.
In my last visit with him I asked about a surgical path and he referred me to an MRI and a Neurosurgeon consult at Sisters of Saint Mary health system through the Community Health division of the VA.
Here is the good part. My grand daughter works at one of the radiology centers for SSM. She is in an RN student. She sorta greased some wheels to get the MRI earlier at her location without going through their central scheduling dept and is handling the MRI results which I have to hand carry to the surgeon consult

[phillygirl]

It isnt a disease. You dont catch it. It is a condition that irritates the trigeminal nerve at the point where it leaves the skull and controls pain, sensory and motor functions of the scalp and face.
As Frosty said at one time it is described as suicidal pain.
When it first started an ER doctor diagnosed it as a sinus infection, then an Urgent Care Dr did too.
The pain meds did nothing, At one time I was crying with the pain and my Daughter took me to the VA ER and a scan revealed the condition.
The VA does not do brain surgery in St Louis so I got a neurologist who put me on neuro pain meds with side effects that effect balance energy etc.
In my last visit with him I asked about a surgical path and he referred me to an MRI and a Neurosurgeon consult at Sisters of Saint Mary health system through the Community Health division of the VA.
Here is the good part. My grand daughter works at one of the radiology centers for SSM. She is in an RN student. She sorta greased some wheels to get the MRI earlier at her location without going through their central scheduling dept and is handling the MRI results which I have to hand carry to the surgeon consult

Much luck to you. I know it's not your thing (but it is mine)...I'll say a bit of the rosary for you this weekend while it's fresh in my mind. And as Celeste said, we care.

[Gramps]

Much luck to you. I know it's not your thing (but it is mine)...I'll say a bit of the rosary for you this weekend while it's fresh in my mind. And as Celeste said, we care.

Thank you
BTW I still have my wife`s rosary.

[80zephyr]

It isnt a disease. You dont catch it. It is a condition that irritates the trigeminal nerve at the point where it leaves the skull and controls pain, sensory and motor functions of the scalp and face.
As Frosty said at one time it is described as suicidal pain.
When it first started an ER doctor diagnosed it as a sinus infection, then an Urgent Care Dr did too.
The pain meds did nothing, At one time I was crying with the pain and my Daughter took me to the VA ER and a scan revealed the condition.
The VA does not do brain surgery in St Louis so I got a neurologist who put me on neuro pain meds with side effects that effect balance energy etc.
In my last visit with him I asked about a surgical path and he referred me to an MRI and a Neurosurgeon consult at Sisters of Saint Mary health system through the Community Health division of the VA.
Here is the good part. My grand daughter works at one of the radiology centers for SSM. She is in an RN student. She sorta greased some wheels to get the MRI earlier at her location without going through their central scheduling dept and is handling the MRI results which I have to hand carry to the surgeon consult

I used to get terrible cluster headaches. My pain meds didn't work either. A guy that my wife worked with suggested I use oxygen for pain. That worked very well for me.

If you are in pain, might want to give that a try.

Mark

[Michele]

It isnt a disease. You dont catch it. It is a condition that irritates the trigeminal nerve at the point where it leaves the skull and controls pain, sensory and motor functions of the scalp and face.
As Frosty said at one time it is described as suicidal pain.
When it first started an ER doctor diagnosed it as a sinus infection, then an Urgent Care Dr did too.
The pain meds did nothing, At one time I was crying with the pain and my Daughter took me to the VA ER and a scan revealed the condition.
The VA does not do brain surgery in St Louis so I got a neurologist who put me on neuro pain meds with side effects that effect balance energy etc.
In my last visit with him I asked about a surgical path and he referred me to an MRI and a Neurosurgeon consult at Sisters of Saint Mary health system through the Community Health division of the VA.
Here is the good part. My grand daughter works at one of the radiology centers for SSM. She is in an RN student. She sorta greased some wheels to get the MRI earlier at her location without going through their central scheduling dept and is handling the MRI results which I have to hand carry to the surgeon consult

Dear Gramps - I hate that you are going through this wretched disorder especially with so much pain involved but the one thing I noticed is you always have your family near and helping. What a wonderful blessing. Keeping a prayer for you. We're all with you.

[Frostbit]

I used to get terrible cluster headaches. My pain meds didn't work either. A guy that my wife worked with suggested I use oxygen for pain. That worked very well for me.

If you are in pain, might want to give that a try.

Mark

Or Gramps, you may want to continue to seek your medical advice from sources based on peer reviewed data as you apparently are.

[Newman]

Or Gramps, you may want to continue to seek your medical advice from sources based on peer reviewed data as you apparently are.

OK, but with "suicidal pain" I'd try goose liver in my belly button is somebody said it worked.